Caregivers of Family Members with Aspergerís Syndrome (AS), High Functioning Autism (HFA) or Pervasive Developmental Disorder Not Otherwise Specified (HFASD)

Please consider helping us in understanding your experience by completing a survey!


Dear Families,

Thank you for your willingness and time in considering to participate in this online study on caregivers with a child/family member with Autistic Spectrum Disorders (ASD) - including Asperger's Syndrome (AS), High Functioning Autism (HFA), and Pervasive Developmental Disorder Not Otherwise Specified (PDDNOS). Your contribution will help professionals to develop a better understanding of the family stress, coping styles, perceived level of support, family resiliency and the psychological well being of caregivers.

Who Can Participate: If you are a caregiver (include but not limited to parents, siblings, grandparents) who has a family member (adults and children inclusive) with ASD, you are invited to participate in this study.  Your participation is completely voluntary and you can withdraw from participation any time even after you have started. If you stop completing the survey, any information previously completed will be deleted.


Instructions: Please visit the following website  to complete the survey.

 The whole survey may take as long as 1 1/2 hours to complete. Please take your time to read and attempt to answer all the questions to the best you can. Please check the answer to each item, and scroll down to the bottom of each page where you can click "next" to proceed to the next survey.

Comments and Contact: Please put in your valuable comments at the end. If you have any questions, you can contact the researcher, Dr. Gloria Lee, University at Buffalo - State University of New York at (716) 645-2484 ext 1068 or e-mail at glee4@buffalo.edu