Wilson's Disease Resources & Information

by Robert S. Stall MD (a Wilson's patient himself)

[Information] [On-Line Discussion Group] [Organizational Links] [Personal Web Pages] [Research Studies] [Wilson's Experts & Associations


Rob Stall MD
November, 2004


Dr. Stall's WD Story

 (4 minutes)

Read |
Audio (from 1989)

Video of Dr. Stall 8-14-1989
(first dose of penicillamine - 2 min)
Video of Dr. Stall 8-29-1989
(videotape by Dr. Munschauer - 2 min)
Video of Dr. Stall 9-5-1989
(description of symptoms & diagnosis - 43 min)

E-mail Dr. Stall

History of Wilson's Disease
(from whonamedit.com)

About Dr. Samuel A. K. Wilson
(1878-1937)



2005 WDA Conference





Dr. Stall's left eye with K-F Ring (8/1989)
 


  

This site is a member of WebRing. To browse visit here.


Information Back to top

Copper Content of Food (from USDA 8-19-05)

 
A Practice Guideline on Wilson Disease (Schilsky & Roberts)

Association with Chromosome 13
(Google search - multiple links)

Frequently Asked Questions (FAQ's) About Wilson's Disease

Copper In Human Health | Foods High In Copper

Dr. Stall's Wilson's Disease Web Links
Note:  not all treatment information is current
See the Wilson's Disease Association web site for up-to-date treatment recommendations

GALZIN (Zinc acetate) - for maintenance or treatment of presymptomatic patients
Galzin (Gate Pharmaceuticals web site)
Galzin (Wilson's Disease Association International web site)
Zinc Availability World-Wide

Liver Transplant Guide

NIH - Wilson's Disease

Patient Histories

Penicillamine (Cuprimine) (from the PDR)
(including Contraindications, Warnings and Adverse Reactions)

Trientine Availability (Merck Patient Assistance Program)

USDA Copper Content of Foods (ranked by highest to lowest copper content) - .pdf file

Wilson's Disease
A Clinician's Guide to Recognition, Diagnosis, and Management

(Book by Dr. George Brewer)

Wilson's Disease for the Patient and Family
A Patient's Guide to Wilson's Disease and Frequently Asked Questions About Copper

(Book by Dr. George Brewer)


On-Line Discussion Group Back to top

 
Sign-up: WILSONS-LIST
The listserver for people interested in the diagnosis & treatment of Wilson's Disease.

Organizational Links Back to top

 
National Organization of Rare Diseases
NORD
WDA of Brazil
http://doencadewilson.org/
WDA of Denmark
http://www.wilsons.dk/
WDA of France
http://orphanet.infobiogen.fr/associations/WILSON/WILSON.html
WDA of Germany
http://www.morbus-wilson.de
WDA of Romania
http://www.wda-romania.org
WDA of Sweden
http://hem.passagen.se/wilsons/
WDA of United Kingdom
http://www.wilsons-disease.org.uk/
WDA of USA (WDA International)
http://www.wilsonsdisease.org/

Updated 2/2/04  Personal Web Pages Back to top

Ms. Dalia Mikha
Melbourne, Victoria Australia
http://www.wilsonsdiseaseonline.com/
Dr. Robert Stall
Williamsville, NY
http://geridoc.net/
Mr. Tom (Billy) Walters
Doncaster, UK
http://www.bountyhunter.org.uk/

 Research Studies Back to top

 
CURRENT ENROLLING PATIENTS Dr. Ferenci's Study of Wilson's Disease Subtypes
Newly Diagnosed Wilson's Disease Patients Clinical Trial
(current research study comparing tetrathiomolybdate to trientine)
For more information, contact the principle investigators, Dr. George Brewer or Dr. Michael Schilsky (see below)
PREVIOUS STUDIES Protocol 310--Treatment of Wilson's Disease With Zinc
Protocol 801--Initial Therapy of Wilson's Disease with Ammonium Tetrathiomolybdate (TM)

 Worldwide Wilson's Experts & Associations Back to top

George Brewer, MD
University of Michigan Medical Center, Ann Arbor, MI
E-Mail | Web Profile

Michael L. Schilsky, MD
Weill Cornell Medical Center, New York City, NY
E-Mail | Web Profile

Caribbean and Central America North America South America Europe Middle East Africa Asia Australia and Oceania Antarctica

Other web sites by Dr. Stall:
Dr. Stall's World
Geriatrics for Patients, Caregivers and Health Professionals
Grassroots Geriatrics
Stall Geriatrics
What Should You Expect At Your Age?  A Lot!   Radio Show

This page designed by Robert S. Stall MD, Geriatrician
(established 3/30/96; last update April 9, 2007)

Copyright 1996 -2007 Robert S. Stall, MD